We took her to visit her big cousin Ainle who was Robin for the night. As you can see, she adores him and loves to play with him.
We then went on over to my mum and dad's who put on a firework show especially for their one and only grandchild but Caitlin was a little bit afraid of the big noises so we took her inside and let her watch from the window. She was fascinated by the colours and really enjoyed it from the safety of the living room! Afterwards she went straight to bed as she was absolutely shattered and we had a big day ahead of us the next morning as Caitlin had been asked to appear in a feature for TinyLife to promote the calender as she is the cover star!
She was so cute in her little dress but I forgot to take pictures so you will all have to tune in to UTV on Thursday at 7.30pm to see her! She was a natural in front of the camera and had everybody cooing over her as she smiled and posed. By the time I was interviewed she was exhausted and spent the filming of it rubbing her eyes but she did a great job. I can't wait to see her on it, but I'm dreading seeing myself!
Today was a big day too. A day I had been dreading. Today we went to the spina bifida clinic to discuss Caitlin's progress and MRI results. I wasn't worried about her progress. I can see she's doing great and I have no concerns with her development. But I was really nervous about all these different things she had been diagnosed with, that I discussed in my last post and what it meant for her. When we got called into her urologist office we sat down and Mr Bailie was talking with another doctor and Caitlin was not happy that she wasn't getting their full attention so she started clapping and clapped louder and louder glaring at them until they looked at her. She's such a funny little character. When she wants something, she'll stop at nothing to get it!
Anywho, Mr Bailie was really pleased with her and had no concerns, he referred us for a couple of scans but we've got used to that now, as he said it's not because anything's wrong, it's just what comes with spina bifida.
Mr Mc Connell, Caitlin's neurosurgeon seen us next and he hadn't even seen her report yet. He read it and went through a few things with us and concluded that right now she doesn't need an operation! YAY!! I was elated. According to him, everything that was on the report is really common with spina bifida and as she isn't showing any loss of function then he doesn't think anything needs done. The only negative was that the report had said no Chiari Malformation was present but he said he could clearly see on the pictures of the scan that it was present. But less than 1 in 4 children with the malformation ever need any treatment so hopefully Caitlin won't. It's a hard thing to accept that with having a child with spina bifida it's not about if they will ever need surgery, it's more a question of when. Right now though, Caitlin doesn't need any surgery so I'm not going to worry about when she might need it and instead enjoy watching her grow and enjoy all the fun we have together.
Like our day out to Lough Negh,
Or reading a story with Daddy,
Or catching her on the laptop when I left her to play with her toys!
I would just like to finish by saying a big thank you for all your support for the appointment today :-)
